survivor Archives - Schurig Center for Brain Injury Recovery

January 2, 2019 by Angela

Art & Education For Survivors

Offered concurrent with the Family & Caregiver Support Group

Art therapy is a form of expressive therapy that uses the creative process of making art to improve a person’s physical, mental, and emotional well-being. The creative process also helps people to develop and manage their behaviors and feelings, reduces stress, and improves self-esteem and awareness. Each month there will be a different focus.

Facilitator

Shari Weiser, an artist and art therapy facilitator experienced in working with a variety of populations, including adults with special needs. Shari is passionate about helping individuals improve their abilities in order to better manage the challenges of daily life.

Cost

$15 per class, scholarships available.

Registration

Space is limited. Participants must register to attend.
Call (415) 461-6771 or email info@schurigcenter.org

December 6, 2018 by Angela

20 Gift Ideas for Brain Injury Survivors

The holiday giving season is here! To help make creating your gift list a little easier, we’ve compiled a list of 20 gift ideas that might help improve quality of life for your friend or loved one who is living with the effects of a brain injury, concussion, or stroke.

Voice memo recorder – A helpful, auditory version of a self-stick note! This easy-to-use, hand-held gadget can be used to record messages to oneself throughout the day. Recorders are great for people who are unable to write due to aphasia or motor problems. They’re also helpful in capturing “on-the-fly” thoughts or to-do items that can be listened to later and transferred to a calendar, planner or to-do list.

Journal or planner – Journals and planners are wonderful gifts to help keep a person organized and on-track with their “to-do” lists. For many survivors, they are an essential tool in managing day-to-day activities, like paying bills and attending appointments. Journals are also meaningful gifts that can help a person express his/her thoughts and emotions as they process the changes in their life after a brain injury.

Subscription to an app – There are many apps available that can help enrich a person’s life after a brain injury. Calm is an app for meditation, restful sleep, mindful movement, and music for focus, relaxation, and sleep. Audible is a great app for an avid reader that may be finding that reading is more difficult after a brain injury.

Scanmarker – A Scanmarker is hand-held digital highlighter and scanner pen that scans words on a paper and wirelessly uploads them to your smartphone, tablet, or computer. Wherever you use your keyboard to type – Scanmarker instantly types it for you. A great gift for a person who is unable to write legibly or type due to aphasia or motor problems.

Post-it notes – A bulk supply of self-stick notes in various sizes and colors (lighter colors are best) are a great stocking stuffer to help a survivor stay organized. Strategically placed around the house, the car, or in a planner, self-stick notes are useful “reminder” tools.

Automatic shut-off appliances – Auto shut-off appliances, like irons or coffee brewers, can truly be a lifesaver for a survivor whose memory may not be as good as it once was.

Subscription to a meal service – Grocery shopping and preparing healthy food can be challenging after a brain injury because a person may not be able to go to the grocery store on their own. These meal services are extra helpful because food arrives portioned into the correct measurements with recipe options. Not having to worry about grocery shopping or measuring foods can really take off a lot of stress off eating healthy.

Prepaid bus pass or Uber/Lyft gift card – Many survivors aren’t able to drive and must rely on public transportation or friends and family to get around town. The gift of transportation is a wonderful way to promote a feeling of independence.

Gym or pool membership – Keeping active and getting ample physical exercise is good for everyone’s health, including brain injury survivors. But, a survivor may not be able to work after their injury and are unable to afford a gym or pool membership. Consider even paying for a trainer to work with the person one-on-one. An exercise, Qi Gong, or yoga DVD is also a great gift.

Noise cancelling headphones – A person can often be triggered by noises after a brain injury. Noise cancelling headphones can help provide relaxation by drowning out loud, triggering noises or promote sleep for people who are very sensitive to noise while sleeping.

Extra-large key chain – A great way to help someone keep track of keys. Some key chains even come with a beeper-finder feature.

Pillow or weighted blanket – Headaches and difficulty sleeping are common side effects that can be experienced after a brain injury. Upgrading to a quality pillow can help reduce headaches. Buy a quality pillow or give a store gift card so the recipient can pick out a pillow of his/her preference. A weighted blanket is pretty much what it sounds like – a heavy blanket. When placed on the body, the weight feels comforting without being restrictive. It is believed to offer many benefits, including improved sleep and anxiety reduction. The weight of the blanket should be specific to the person using it. The general formula for picking a weight is 10% of the user’s body weight plus a pound or two.

Adaptive eating and kitchen utensils – It can sometimes be hard to use traditional utensils to eat or prepare food after a brain injury. There are many different types of adaptive eating and kitchen utensils to help aid in the process, like adaptive silverware, a rocking knife, or snug straw.

Essential oil diffuser – Essential oils are natural aromatic plant compounds that are believed to offer a variety of benefits. Peppermint can help with headaches. Lavender is known for calming and relaxing properties. Frankincense can offer wonderful mood support; help improve focus and concentration, and may reduce irritability and restlessness.

Eye mask or sun blocking curtains – A brain injury survivor may experience periods of insomnia. An eye mask or sun blocking curtains can help a person sleep well during the day.

Jigsaw puzzle – Jigsaw puzzles can be a great therapeutic tool to help rebuild cognitive abilities. Start with a 25-piece puzzle and graduate to larger puzzles as a person’s abilities improve.

Hands-free hair blow dryer holder – After a brain injury, many people don’t have the same coordination in their hands and arms that they once had. A wall-mounted, hands-free blow dryer holder can help make creating the perfect “hair-do” much easier.

Shoe lace anchors – Some survivors may find it challenging to tie shoe laces. Lace anchors are a great stocking stuffer that will help pull laces tight without having to tie.

Watch – After a brain injury, people often find that they lose track of time because their “internal clock” may be off. An easy-to-read watch, showing the time, day and date can be super helpful. Many watches even come with alarm settings and displays to program in phone numbers and appointments. An alarm feature can help survivors learn to take their medications independently or serve as a reminder to cue a person to their next task or appointment.

Give a gift from the heart to help make everyday living easier – Daily living with the effects of a brain injury can be challenging. There are many meaningful and personal gifts you can offer that will help improve a person’s quality of life. Offer to help organize bills or help run errands. Pay a bill. Living with a brain injury can be expensive, especially if a person is unable to work after his/her injury. Offering to pay a bill is a great way to help ease financial burdens. Hire a cleaning service. Prepare and share a home cooked meal. Not sure how you can help? Just ask.

September 26, 2018 by Angela

Strategies for Continued Improvement

Going home after a long stay in the hospital can be exciting. But it is important to note, recovery may not be complete when inpatient rehabilitation concludes.

You will have learned important strategies during inpatient rehabilitation that will help make the transition from institution to the community safe and successful. It is very important that these techniques be used consistently and reinforced regularly.

And although exciting, leaving the hospital can be challenging for a number of reasons. One of the less obvious reasons is the fact that often a survivor of brain injury feels that he will “be fine once I am home and in my own space.” The exact opposite may be the case. In a less familiar, more structured environment (like a hospital), individuals tend to be more attentive and aware of their surroundings. When a therapist or doctor is observing you, you tend to be focused on the approaches and techniques they taught you. The presence of a nurse, physician or therapist provides “cueing” even if nothing is said.

If the situation at home lacks structure and supervision or does not encourage carryover of the strategies taught during inpatient rehabilitation, there may be a slip back in function and possibly even safety issues.

Once an individual gets home after being hospitalized for a long period, the desire to continue therapy may diminish. Encouraging continued rehabilitative efforts may involve some cheerleading, but it is important that the process continue.

Recommended strategies for optimal performance and continued improvement after leaving the hospital:

Staying consistent with compensatory strategies

You or your loved one will have learned a number of compensatory strategies while in rehabilitation that need to be consistently maintained after leaving the hospital. This may include keeping a set schedule from which the survivor does not waiver. He may also need checklists to complete the morning routine or organizers to plan daily activities and schedule appointments. And it’s crucial that he avoids situations (typically identified during rehabilitation) that trigger undesirable reactions or behaviors. These can include places that are noisy, bright, crowded, hot or cold—or avoiding complex, unfamiliar or new tasks at times when the brain injured person is tired, hungry, hot or cold.

Rest

Regular rest breaks or naps should be a scheduled part of her day. She won’t need excessive sleep, but it’s important to make sure she has scheduled downtime every day. Inadequate sleep or rest can lead to undesirable behavior and/or decreased cognitive function.

Nutrition

Eating a healthy, balanced diet, with adequate fluid intake, is crucial to helping the brain-injured person function at maximal level. Ask your doctor about sugar, caffeine and alcohol use.

Exercise

Regular exercise and activity is an important part of every day. Keeping active is not only good for the body, but the mind and brain. The extent and type of the exercise should be cleared by your physician.

Social contacts, especially with brain-injured peers

Being with people is important for everybody. And for the brain injured individual, it’s particularly important to connect with others who have been through a similar experience. There are support groups, day treatment programs and adaptive courses—many available through local community colleges—that can provide a brain-injured person a structured way to be with other people.

Preventing a secondary injury

In order to prevent a secondary injury, it is important to monitor the brain-injured person’s behavior. She may need to be supervised when engaging in new, unpracticed activities. And, as noted above, she will need to avoid situations that may cause undesired behavior or reactions. She will need to avoid recreational drug and alcohol use.

Accessing answers to questions as they come up

The facility that discharged you home would be the first place to contact when questions arise. If they are unable to answer your questions, ask where they can refer you. This may well be a community based brain injury organization or a state level association. A great deal of general information is available on line.

More helpful information…

Brain Injury Information Handbook

This article is an excerpt from Schurig Center’s Brain Injury Information Handbook – a guide for patients and families from hospital to home. View and download your free copy of the handbook here for more helpful information to help you navigate the journey to recovery after a brain injury, concussion or stroke.

Resource Referral Assistance

You are not alone. We are here to help! Schurig Center is also pleased to offer referral resource assistance to help support you in your recovery process. Get more information about this service and access our online resource directory here.